about the situation with cystic fibrosis.
Dear Mr President.
In March of 2007 you had an Internet conference. I asked where the issue of solving the problems of patients with the most common genetic disease - cystic fibrosis. My question was the first among those to which you responded in an interview. You have found knowledge of statistics for the treatment of this dr.geneticheskih disease and diseases in our country.
quote from your response: "... On the one hand, the rare disease, but, on the other hand, it is much of the people all the same across the country, unfortunately, those of patients, and we need to know each of them, just personally. (... ...) Once again to emphasize that today, were taken as the organizational and financial solutions to the situation in the supply of drugs within program of additional drug supply change and make it truly working. »
Mr President, I must say that since then the situation with the treatment of our patients, unfortunately, has moved only for the worst. Increased mortality due to nosocomial infections and untimely hospitalizations.
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